Workshop 1 (4 May 11am-2pm )

Methodologies for equitable people-centred health measurement and analysis

Description

Theories and practices of person-centred care emphasize the importance of research on equity and individual differences as foundational to understanding mechanisms and person-centred outcomes in diverse populations. The goal of this workshop is to provide practical guidance on approaches to equitable, people-centred measuring and analysing health and quality of life. This guidance will draw on key theoretical perspectives underlying idiographic versus nomothetic measurement, person-centred versus variable-centred analysis, intersectionality research, and realist methodologies for theory building. The workshop will include practical examples of approaches to unbiased measurements and analyses in diverse populations, including the use of:

  1. Psychometric methods (e.g., item response theory and latent variable mixture models) to reduce biases in measurements of patient-reported outcome and experiences,
  2. Statistical models (e.g. multi-level and latent class models, dynamic structural equation models) to reveal individual differences in health and quality of life trajectories,
  3. Qualitative approaches including the development of personas to understand individual differences of diverse people, and
  4. Realist designs to build theories about programs explaining what works, for whom, in what circumstances, and why to promote person-centred health care.

The workshop will be delivered at an introductory level, covering key theoretical perspectives and methodologies relevant to person-centred research. This will include interactive learning through demonstrations and small group discussions. Participants will have the opportunity to consider how these theories and methodologies can be applied to their current or proposed research projects. Each group will report back on shared learnings and outstanding questions for full group discussion. Resources will be provided for further self-directed in-depth learning.

Target group

Researchers, analysts, trainees, and users of research interested in methodologies for equitable people-centred health measurement and analysis with the goal of promoting person-centred outcomes in diverse people.

Trainers

The trainers are part of the equitable people-centred health measurement research team (see www.healthyqol.com for details) and have published and held workshops with topics such as patient-reported outcome and experience measurement, modern perspectives of measurement validation, latent variable measurement and structural equation modelling, response shift, qualitative research methods, research syntheses, and patient and public involvement in health research. The workshop will be offered by:

picture of workshop leader Richard Sawatzky

Richard Sawatzky

Richard Sawatzky is professor in nursing at Trinity Western University, lead of the patient-reported outcomes program at the Centre for Advancing Health Outcomes, and internal advisor at the University of Gothenburg Centre for Person-Centred Care. As a Canada Research Chair since 2011, Dr. Sawatzky aims to advance a new paradigm of equitable people-centred health measurement for measuring diverse perspectives of health and healthcare. His team-based program of research includes: 1) methodological research on patient-reported outcomes measurement, 2) mixed-methods clinical research on quality of life assessments, 3) and knowledge translation to support use of people-centred health measurements in healthcare (www.healthyqol.com).

picture of workshop leader Ava-Mehdipour

Ava Mehdipour

Ava Mehdipour is a post-doctoral researcher in the School of Nursing at Trinity Western University and a Michael Smith Health Research BC Research Trainee. For her post-doctoral research, Dr. Mehdipour is investigating equitable health measurement in age-friendly communities (www.healthyqol.com/emac). Her research interests include using equitable people-centred approaches to measure and understand older adults’ health and quality of life. Dr. Mehdipour also holds a role as a Senior Analyst at Health Quality Alberta.

picture of workshop leader Jae-Yung-Kwon

Jae-Yung Kwon

Jae-Yung Kwon is an Assistant Professor in the School of Nursing at the University of Victoria, Canada. His research program focuses on advancing person-centred care by tailoring health services to the needs of individual patients. Using person-centred mixed-methods approaches, such as latent class analysis and persona development, he contextualizes variations in patient-reported outcomes. Dr. Kwon is also a Research Fellow at the Institute on Aging and Lifelong Health and a Michael Smith Health Research BC Scholar.

picture of workshop leader Kara-Schick-Makaroff

Kara Schick-Makaroff

Kara Schick-Makaroff is a Professor and Associate Dean Graduate Studies in the Faculty of Nursing at the University of Alberta, Canada. The goal of Dr. Schick-Makaroff’s program of research is to enhance knowledge about use of quality of life assessment and promote equitable person-centred care, in order to improve services for people living at home with chronic and life-limiting illnesses, particularly kidney failure. Simply put: her goal is to have clinicians, administrators and programs look at the information that patients provide and act on that information with patients.

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